ADHD & Aspergers Forum

ADHD, Aspergers and related disorders :- Post your questions, or just make your opinion known. Tell us if you have ADHD/Aspergers and what life is like for you. Or are you a parent who would like to share your experiences or need advice from others. Feel free to post your comments but remember to consider the feelings of others. The opinions expressed here are those of individuals and not those of professionals and may not reflect the views of the host. Discression is advised when ascertaining the validity of message contents. Stay safe - do not give out your address or phone number. :-)

ADHD & Aspergers Forum
Start a New Topic 
Author
Comment
View Entire Thread
Re: my son has been diagnosed

Hi Jewel, reading your message brought it all back to me, our 6 year old son was diagnosed with Asperger's about a year and a half ago. You have absolutely done the right thing in getting your son diagnosed.. Many people see a "label" as a negative but the positives far outweigh the negatives. Now you have an explanation as to why your wee one is a bit different, you also have an explanation to give to him and other people, a diagnosis also opens many other doors that will be able to help you that may not neccessarly have been available to you otherwise. Most importantly you can will be able to learn how to communicate with you son more effectively.
Many people say that when your child is diagnosed it feels like a bereavment (it certainly did to us, we felt like we had lost a child that ironically we never had in the first place) Although I don't know you or your personal circumstances, my advice to you would be to take a bit of time to come to terms with the diagnosis yourself before offering an explanation to your son. I cried many tears and eventually had to take some time off work etc as I felt like I wasn't coping anymore until one day I eventually decided that I had to get to grips with things and find out as much as I could and see what the next step should be. When the time does come to tell your son, you will be better equiped and stronge enough to deal with his reaction. There are plenty of wedsites, books, leaflets etc that can direct you on ways to tell your children, friends, family etc about his diagnosis and how special your son is. The National Autistic Society wedsite has a great collection of information, leaflets etc, take a look www.nas.org.uk
My thougths are with you at this time, I know how isolated you must be feeling at the moment. When Matthew was diagnosed intially I used to find myself offloading in this forum and I was always guaranteed of a few shoulders to cry on and useful advice to boot. This is a great group, please feel free to use and abuse us because we have all been there and know exactly how you are feeling at this very difficult time,
Take Care
Sharon X

Re: Re: my son has been diagnosed

Hi again,
Thanx for the reply sharon and im sorry i havnt got back for ages but as im sure you can imagine things have been pretty tough and altho im now a little better i still feel like my head is not quite part of my body at times.

Things have been ok but been having to see all sorts of different people and when i leave i feel even worse than when i went in, i know its something we need to hear and i know its all for the best for Liam but its really hard going as when i get home i see him as "Liam" just like ive always done but when i take him to the OT/child development/etc etc.. i feel like im right back where i started when they gave the diagnosis... Is any of this making sense LOL

Even tho i have 6 kids i havent even bought 1 single prezzie and im feeling pretty bad and totally stressed out with that.
Also i got offered a job the week before his diagnosis and i really feel some days that i just cant face it (i work as a play leader at a playscheme place with kids all day and i just think of Liam all the time and think what he can and cant do when little ones aged 1 - 5 can do them and i really dont want to be thinking like that

I also had a saturday job working 8 - 5 in a supermarket but i foned them on monday and told them i wouldnt be back... I just felt exhausted then having to deal with Liam on top was just too much.

Anyway i took my son to see the OT 4 wks ago she told me to apply for DLA for him, so after 4 weeks of not wanting to do it ive eventually sent it off.

Anyway thanx for my rant, im off to bed now.

Hope your all well
Night night
Luv
Jewels xxx