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Social Security
Answers Votes Percent
1.
A Social Security Guideline for People With HD seeking disability to get approval for disability on the first request. 41 100%
Total Votes: 41

Hospice Guideline
Answers Votes Percent
1.
A National Hospice Guideline for caring of people with HD similar to one for ALS. 36 100%
Total Votes: 36

In-Service Guideline
Answers Votes Percent
1.
An In-Service Guideline on Huntington's Disease for home care or nursing home care personnel including videos, literature, how to's. 29 100%
Total Votes: 29

Family Service Guidebook by State
Answers Votes Percent
1.
A Family Services Guide Book, by State, listing agencies where people living with HD can get support in their community or state with awareness of HD provided to those agency by HDSA. This guideline would include where support can be found for home care. 48 100%
Total Votes: 48

Law Enforcement Awareness
Answers Votes Percent
1.
A National Law Enforcement Awareness of Huntington's Disease and listing of how to contact pro bono lawyers in each state to assist HD families if necessary with awareness of HD provided to those pro bono agencies and every law enforcement agency. 25 100%
Total Votes: 25

Physician's General HD Information Brochure
Answers Votes Percent
1.
A Physician Brochure Briefly Explaining Huntington's Disease and where information can be obtained to help their HD patient, especially in remote areas of the country. 31 100%
Total Votes: 31

Center of Excellence Knowledge Sharing
Answers Votes Percent
1.
Sharing of knowledge between all HD Centers of Excellence on Family/Social Services with information being available on a central website 27 100%
Total Votes: 27

HD Literature
Answers Votes Percent
1.
All Huntington's Disease brochures and guidelines available free of charge and in PDF format on a centralized website. 34 100%
Total Votes: 34


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