| Subject: |
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Re: hello? |
| Name: |
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Lisa |
| Date Posted: |
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May 29, 03 - 2:45 PM |
| Email: |
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leebaby@sstelco.com |
| Message: |
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I'm so sorry that no one has replied to you yet. Its rough having medical problems at any age, and I think it would be much harded having them in your teen years when you should be able to get out and have fun with your friends. I'm replying to you here on the board and I'll also email you personally. Please think about joining our email list. We're here to support you and help you in any way we can. Gentle Hugs, Lisa
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Replying to: Umm..alrighty.. Well my name's Anna and I am a 17 yr old girl diagnosed with auto immune neuropathy a few years ago. I have been looking around this site and others for the past 3 years when I was diagnosed, trying to find someone with a similar problem...or just someone else who may understand. I feel a little silly writing this, but I live in a small town, and there is no one else withiin a 3 hr distance to the city with my illness, well under the age of 80..and even on a broader scale my form of CIDP and autonomic neauropathy is apparently very rare throughout the country (australia)...so it would be great to just hear from someone who understands...it's not that I don't get friends and family support here...but sometimes it feels as if no-one really can understand the invisble pain and whatnot that comes along with diagnosis. I recieve an infusion of a blood product called intragam every 2 weeks in hospital, and have a few other drugs that I can't remember the names of now. It can be a bummer sometimes, just going in there, being hooked up for 6 or 7 hours then taking 2 days to recover...and only a few days later having to do it again and again and again. Hmm, now I feel like I'm whinging! eeek! It's just tough because I am in my final year at high school, trying to study and maintain 'normal life' but it is getting increasingly hard. should I just forget everything I ever did and loved and focus on health ...or neglect 'looking after myself' and carry on living the life I love? oh I don't know! I don't even know if this message is going to work or not...just wanted to try and get in touch with someone else who lives with a serious and chronic illness...anyone, but especially if you got it when you were young too. well..happy easter anyway! |
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