| Subject: |
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hello? |
| Name: |
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Anna |
| Date Posted: |
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Apr 20, 03 - 12:11 AM |
| Email: |
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melville_anna@hotmail.com |
| Message: |
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Umm..alrighty.. Well my name's Anna and I am a 17 yr old girl diagnosed with auto immune neuropathy a few years ago. I have been looking around this site and others for the past 3 years when I was diagnosed, trying to find someone with a similar problem...or just someone else who may understand. I feel a little silly writing this, but I live in a small town, and there is no one else withiin a 3 hr distance to the city with my illness, well under the age of 80..and even on a broader scale my form of CIDP and autonomic neauropathy is apparently very rare throughout the country (australia)...so it would be great to just hear from someone who understands...it's not that I don't get friends and family support here...but sometimes it feels as if no-one really can understand the invisble pain and whatnot that comes along with diagnosis. I recieve an infusion of a blood product called intragam every 2 weeks in hospital, and have a few other drugs that I can't remember the names of now. It can be a bummer sometimes, just going in there, being hooked up for 6 or 7 hours then taking 2 days to recover...and only a few days later having to do it again and again and again. Hmm, now I feel like I'm whinging! eeek! It's just tough because I am in my final year at high school, trying to study and maintain 'normal life' but it is getting increasingly hard. should I just forget everything I ever did and loved and focus on health ...or neglect 'looking after myself' and carry on living the life I love? oh I don't know! I don't even know if this message is going to work or not...just wanted to try and get in touch with someone else who lives with a serious and chronic illness...anyone, but especially if you got it when you were young too. well..happy easter anyway!  |
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